Saturday, 16 July 2016

Learning to live with an illness and a disability


I wanted to write this post on learning to live with an illness and disability as I feel that everything in life is about love, caring for one another, sharing everything we have and giving hope and encouragement to others for the future.

In the summer of 1970, at the age of sixteen I tragically went blind and my world, as I knew it came suddenly to an end.  I had left for work as usual that morning to catching the bus like I always had, blissfully oblivious to the fact that my life was about to take such a colossal and rapid transformation.  I arrived at work at Boots the Chemist in Gateshead just like I had every day, everything was normal and I felt fine.  As I finished lunch with my colleagues an unexplained and sudden horrible wave came over me.  Disorientated and confused, I remember the grotesque and surreal feeling as I could still hear the girls chatting and laughing in the background.  I began to feel numb; I was terrified, confused and felt totally vulnerable.  After that nothing appeared to be clear in my mind, a blur of noise and motion as I fell unconscious.  In that cruel and unexpected moment everything in my life changed forever.

I found myself waking up in the Queen Elizabeth Hospital, in a straightjacket with a tube stuck down my throat as my stomach was being pumped.   I could not understand what had happened or what was going on, I cannot remember much more until I suddenly woke up in Dunston Hill Hospital jut up the road from where I lived.  

I had never been in hospital before and it was a truly hideous experience to go through at that young age.  I had only been in a few days when three people had died on the ward.  I was only a child and scared out of my mind.  After eight or nine days I had another of those horrible bad turns.  I awoke disorientated in a bright room, fuzzy and unfamiliar it seemed to move all over the place.  My body felt like a tonne weight, as if someone was sitting on me.  Tired and dazed faces appeared as if from nowhere, moving in slow motion making me violently sick.  It was a deeply disturbing time, I felt very abandoned and isolated, a terrifying time that has haunt me ever since.  They operated on me but there were complications.  In just three weeks I had went from a vibrant young working class girl working on the counter in Boots to lying confused and paralysed from the chest down.  

At first there was a lot of confusion regarding what had happened but we eventually found out I had Epilepsy.  These seizures and episodes had caused me to permanently loose my sight.
When I first lost my sight I thought my whole world had collapsed and I fell into the depths of despair, which was the most terrifying place to be.  The days were long and lonely, my brothers and sisters were at school, work or married.  My friends had disappeared.  I spent most of my time in my bedroom listening to the radio; I felt isolated and didn't feel part of the family anymore.  I was so unhappy.  I eventually came to realise that nobody in this world owed me anything and if I wanted to succeed in life then it was up to me to do something about it.  I had to let go of what I had lost and think about the future not the past.  After all that is the one thing you cannot change!  


I began to set myself goals and was determined to go after my dreams and if I didn’t succeed at first then I would try again and again and again until I did.  I set small ones at first, building up each time, ensuring I kept moving forward despite the set backs and obstacles, overcoming adversity.  What might seem like a small victory can lead to amazing things and it all begins with that first step, that leap of faith.  It's all about think and focusing on what we can do and still very capable of if we put our minds to it.  Never give up on yourself and always remember that we are all equal in this world, no one being better than the other.  Always believed in yourself and remember that everything is possible.  Stand tall, be strong, go forward and don't look back.

By doing just this I managed to do so much, somethings I would never have imagined I could have achieved back when I was stuck in my bedroom, isolated and in deepest moments of despair.  I had learned Karate for a few years when could see.  I decided not to let my condition stop me and began to learn once again.  I had always wanted to get to black belt and set this as my goal.  It was hard at first but eventually I managed it on January 1979, after training for 7 years.  I was the first blind female black belt in the world.


My Stella Williams trophy award for outstanding achievements in Karate at the Kata championships in Chester 1978.


In  the early 1980's I was in the first blind rugby team in country.  Trainers from overseas came over to teach our group.  They were also blind and had set up similar teams in there own country.  We trained at Gateshead cricket club.  I had been the first female to join all male team.


Myself at the age of 28 in 1982 when I played with an all male blind rugby team which is thought to have been the first match of it's kind ever to be played in Britain.



I also joined in the track and field squad at Gateshead, even competing in The National Games for the blind.  I achieved Gold, silver and bronze for the Shot put, Discus, Javelin, Long jump, High jump and 100m sprint.  I was selected for the Great Britain squad and had began training for the Paralympic Games in Los Angles.  Unfortunately this was cruel cut short when I had to stop due to husbands accident.


Blind Athletics UK Championships

Gateshead Blind Athletes


At the age of 25 I was the first person ever to receive the Wilkinson Sword Award for outstanding achievement in sport and I am still the only woman to ever have be awarded it in 36 years.  I believe that the world can be our oyster and life is what we make if it.  It is up to us which pathway we choose to go down.

Wilkinson Sword Award. Picture above is Christine with coach Sandra Coates at the 1979 Sports Awards. Picture below is Christine with the Wilkinson Sword and the Silver Salver award.


Me and winner Steve Black at the 30 year anniversary of the Wilkinson Sword awards.


If we long to reach our dreams and goals in life whatever they may be, disability or no disability, we can succeed.  Don't let anything or anyone dampen your morale or stand in the way of you reaching your goals.  The key to the door and to success is to have confidence, faith, hope, determination and most of all belief in yourself.  So whatever the reason for your disability or illness remember there is always a way forward.




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Friday, 24 June 2016

Daft as a Brush Garden Party


I'm always really pleased to hear from Brian Burnie as we go back a long way and I love him to bits.  I was delighted when he asked if I would come along to sing and entertain for the Daft as a Brush Garden Party.  This yearly event is an amazing chance to meet the volunteers, people who have donated and offered their help for this fantastic local charity.  Daft as a Brush Cancer Patient Care offers staffed custom-made vehicles to transport outpatients, free of charge, to and from hospital who are undergoing Chemotherapy and Radiotherapy cancer treatment.  


daft as a brush cancer patients care
Me by the gates at the Daft as a Brush entrance

It was a fabulous day and thank you to everyone for making me feel so welcome, it was great to catch up with you all again.  The food was outstanding as usual and even weather did its part as it turned out pretty nice in the end.  It was good to see everyone getting stuck in, having a laugh and really enjoying themselves.  


everyone enjoying themselves at daft as a brush garden party
Everyone posing for a photo by the marquee



I entertained and sang to everyone throughout the day but think the Hokey Cokey was the one to get people off their feet and in the party spirit.  My son Ryan came along to film me which was great, even if he did get a little carried away joining in with the words!  







The highlight for me on the day was going up in the cherry picker with Brian. This was a first for me and I thoroughly enjoyed the experience.  At first I was not quite sure what I was install for, but I am never one to avoid a challenge.  We climbed aboard and started to set up my guitar and microphone as the gathering crowd looked on in stunned surprise. 


christine deponio and brian burnie in a cherry picker
Me and Brian getting into the cherry picker 
going up in a cherry picker with brian burnie from daft as a brush
Getting ready to perform as the cherry picker starts to raise


up 30m in a cherry picker singing for the daft as a brush garden party
Me 33 metres up singing to the crowd

It was a fabulous experience and one I certainly will not forget.  Overall I had a great day and hope everyone else did too.  Brian you're a real star and doing an amazing job along with all your dedicated volunteers.  It was also a day to celebrate as Daft as a Brush received the Queen's Award for Voluntary Service in recognition of the outstanding work they do for the community.  This really is a huge honour as it is the highest award a voluntary group can receive in the UK.  To learn more about the Queen's award click here.

christine and brian from daft as a brush
Me an Brian Burnie founder of Daft as a Brush


I would recommend volunteering for Daft as a Brush as they really do make a big difference to a lot of peoples lives and are an excellent organisation to work with.  They really depend on volunteers support to operate their transport service, as well run their shop in Eldon Square and for much needed fundraising.  

It cost approximately, £100,000 per year to run the the Daft as a Brush Service.  If you would like to donate it is very easy and a link can be found by clicking here.  

If you are local you may want to help them out with a few hours a week or maybe longer, just click here for further information on how you can help.

We had a fantastic time at the Garden Party and I would definitely do this again as we had a real laugh for a great cause.  I look forward to catching up with all the lovely friends I met thereboth old and new, in the near future. 






If you would like to learn more about Daft as a Brush and the work they do you can visit their website at:

http://www.daftasabrush.org.uk

And also find them on Facebook and Twitter.




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